What you see & don’t see

For me it is always being in tune with my body. Yesterday we were supposed to go to the mountains and go skating. I didn’t make it skating. Partial seizures started with a vengeance. It took heaps of CBD and THC to calm them down. I fought it and won. We went for a short drive and to the grocery store. 

Today my whole body hurts. My brain hurts with jumping headaches. When I feel like this edibles and a medicated THC bath helps. If I go anywhere today it will be with my wheelchair. We are going to try a drive again today. At least the backcountry in Kananaskis is 30 minutes from our place. My husband who is fantastic will be doing the rest of the shopping and cleaning. I just wish I didn’t have to pay for what I did the day before. ūüíú

This makes me smile 

This makes me smile. If I don’t use cannabis zero fun. Try starting your day off at 3am because you can’t sleep. It is now 8am the partial seizures have started. So nauseated and my brain hurts. Do I sound like I am having fun? No worries because the THC will help with the nausea and brain pain. The CBD will slow down the seizure activity. Cannabis allows me to have fun! ‚úĆūüćĀūüí®ūüí®

Selfie with a message 

My name is Shelley Thiemann and I have Generalized Idiopathic Epilepsy. This is me on a good day. I also suffered a status ellipticus seizure that caused brain damage just over a year and half ago. The only time my disability is visible would be if I needed my wheelchair because I have exercised induced seizures. Or if I have a Tonic Clonic seizures in public. Then it is very visible. 

Surviving the Holidays

It is that magical time of year once again.  So many things to do and make.  There are so many parties to attend and friends to see.  Family obligations to see everyone and enjoy some festive cheer.  The tree is trimmed and our place looks like a Christmas card.  Sounds like every Christmas since I was a child.

Since my epilepsy has changed, all the magic of the holidays is gone.  I do not think I have cried this much in a very long time.  The holidays are a difficult for many.  I do know that I am blessed with family, friends and a beautiful home.  I do not have my health.  With my epilepsy and the huge amount of pills I took for three years affected my immune system.  Tis the season to catch a cold no matter where you go.  As you may know that changes my seizure threshold to zero.  Partial seizures are an everyday event now.  Those I can handle and treat with CBD & THC.

Shopping is a pretty big deal for me.  I do love the mall and picking that perfect gift.  Now going to the mall means sitting in a wheelchair to shop.  I get exercise induced seizures from walking too much.  Nothing is worse than having a tonic clonic seizure in public.  The lighting in some stores is to much for my brain.  If there are to many people that freaks me out as well.  People look at you with pity because my invisable illness just became visable.  All I want to do is just get out of there and go home. I feel safe at home and nobody is staring at me.  It is heaps of disappointment because I used to love doing these things.

I am very thankful to have an amazing husband who understands.  Last year he did it all as I laid in bed.  I was still recovering from a status seizure that affected my brain in horrible ways.  It was my grandsons first Christmas and I just wanted to be heathy for it.  Well that wish did not come true but we did make it special in a different way.  That is why this holiday season I had heaps of hope that I was going to feel fantastic for it.  Well that is just not in the cards for me.

So I am doing things different this year. ¬†Plans with family are made and that is the only place I will go. ¬†They understand if I am to sick to attend. ¬†I started shopping online early and in the end its not all about gifts. ¬†Time with the ones you love is what the holidays are for. ¬†Depression is really difficult for many during this season. ¬†I can get really down on myself because everything is not perfect. ¬†Try doing little things like making something special for your loved ones. ¬†Really all our families want is to visit with us. ¬†I try to focus on the positives in my life. ¬†My husband and family are the positives in my life. ¬†My social media family is the other positive part of my life. ¬†It is nice to know that you are not alone on your journey. ¬†I would also like to thank my beautiful friend Kelly for understanding and always being there. ¬†I can’t wait to meet her in person one day.

I wish you all the best over the holiday season!  Looking forward to 2017 and how the cannabis industry will continue to grow and change.  Take care and I wish you all the best!

holidays

Stopping Complex Partial Seizures with Dabs

I really don’t like complex seizures and I am so happy that my husband is home today. I am going to try and take you through my seizure activity. I am on my phone so I hope that this makes sense. The seizure started off as a really strong deja vu aura followed by a short complex partial seizure. My husband talked me through it and immediately started treating for it. 

Ticture first and then followed by some sweet CBD shatter which is also known as dabs. I use a portable one just so I don’t burn down our place. After a few CBD dabs I will switch to Bubba Kush shatter. It is a very strong Indica and slows down my heart. You can feel your body and mind slowly relaxing. Normally I would have taken 5mg of Adivan to slow down the seizure activity. 

Each persons reaction to medical marijuana will vary. It is by far better than popping a bunch of pills. Cannabis actually stops the seizures. Now the doctors are learning with me. Yes I have epilepsy and now I can fight back. 

So I lay back in bed with some earbuds. Let my mind focus on the music. Cannabis does it’s magic and I don’t feel 100 percent but it is better than being zoned out on adivan and meds for nausea. 

Now this is the part that is crazy. With my type of epilepsy I will not remember writing this. So the seizures are slowing down. Nausea starts but at least I won the fight. 

The reason I thought I would try to blog through the seizures, was because of my previous blog. My vaporizer is my life line. It doesn’t make me go crazy or anything else that they said. This was my own personal experience and depending on what I wrote maybe deleted tomorrow lol ūüíú

Doctors Warn Against New Marijuana Trend With Deadly Consequences | Jordan | Z107-7

True if you are trying to make the product at home.¬† However this is just another way that the media misinforms the public.¬† If you are doing dabs in a safe manner it will not lead to all the things they listed.¬† Omg maybe if you are doing LSD dabs.¬† Where do they get their information from?¬† Why do they feel the need to scare the shit out of people?¬† CBD dabs actually stop my partial seizures.¬† It’s articles like this that undo so much of the positive messages out there.¬† Guess its just about big pharma again.

Source: Doctors Warn Against New Marijuana Trend With Deadly Consequences | Jordan | Z107-7