The dreaded MRI test results. It has been three years since my last MRI and was very curious to see if there was any change. The last one I had showed that my left hippocampus had reduced by 80% and there was a large lesion on my right hippocampus. There was also tissue loss in the right temporal lobe. At that time they also did a PET exam so they could light up my brain and see what is working. It confirmed the earlier results, and that I would have difficulty with memory both long and short term. I also have difficulty with speech, language, and some cognitive functions.
The exciting news this time is my brain has not lost any more mass. For the past three years, I have only taken CBD & THC to control my epilepsy. As I stated before I am unable to take any seizure medication. What is optimistic for me at least is that there has been no change. No change means maybe the CBD is working. I have read several medical articles regarding this. By no means is this a cure. For myself and my type of epilepsy, it works for me. I still have seizures but they do not last as long. The postictal phase is not as long either.
The one question that I get asked the most is “How do you stay so positive?”. I try my best to keep a positive outlook. Laying in bed crying for days still, happens. I think it is good to get it all out sometimes. Then I pick myself up and continue on. Finding a purpose in life has helped me the most. I love advocating for patients rights with CFAMM.
My hope for the future is my next MRI is going to show tissue growth! Then we will be making medical history with a plant!