The dreaded MRI test results. It has been three years since my last MRI and was very curious to see if there was any change. The last one I had showed that my left hippocampus had reduced by 80% and there was a large lesion on my right hippocampus. There was also tissue loss in the right temporal lobe. At that time they also did a PET exam so they could light up my brain and see what is working. It confirmed the earlier results, and that I would have difficulty with memory both long and short term. I also have difficulty with speech, language, and some cognitive functions.
The exciting news this time is my brain has not lost any more mass. For the past three years, I have only taken CBD & THC to control my epilepsy. As I stated before I am unable to take any seizure medication. What is optimistic for me at least is that there has been no change. No change means maybe the CBD is working. I have read several medical articles regarding this. By no means is this a cure. For myself and my type of epilepsy, it works for me. I still have seizures but they do not last as long. The postictal phase is not as long either.
The one question that I get asked the most is “How do you stay so positive?”. I try my best to keep a positive outlook. Laying in bed crying for days still, happens. I think it is good to get it all out sometimes. Then I pick myself up and continue on. Finding a purpose in life has helped me the most. I love advocating for patients rights with CFAMM.
My hope for the future is my next MRI is going to show tissue growth! Then we will be making medical history with a plant!
Congrats you now are legal to order cannabis! Chances are your clinic has given you a list of all the licensed producers (LP) in Canada. So how do you choose which one is best suited for you? This step freaked me out and there was not a lot of help back then. The good folks at Lift.ca have made this daunting task much easier. They will go over which producers offer the best strains for your medical condition. Most producers do offer compassion pricing and it is best to inquire how much of a discount they are giving. It does vary and so far I am loving Aurora at 5 dollars per gram.
One of the main issues with producers is they are going through product very quickly. So for example one of my main favs is God Kush by Broken Coast Cannabis. Sometimes they have it and other times they do not. This can be really frustrating. So with my prescription I had it split between two different producers. When one does not have what I need the other one will. I do like to switch up my strains as I build a tolerance quickly. Broken Coast is great about informing you when their next strains are coming out. I have tried several different producers in the last year. So far I am very pleased with both producers. The strains that are coming out are improving and just remember go low and slow.
Having a positive outcome with cannabis depends on you. You need to do your research and it is not a cure for epilepsy. CBD does help control seizure activity but not on its own. You do need a small amount of THC to get the proper effect. With my form of epilepsy this is the only treatment that works. Finding that perfect ratio between CBD and THC can be tricky. Always remember to go low and slow! Yes I know I wrote that twice because it is important. It really is trial and error when deciding. That is where the government should have made things a little bit easier for us. They are making changes but not fast enough.
The product that you purchase from your licensed producer is a medical tax deduction. I have tried multiple times to have my medical marijuana covered by my insurance company or my husbands. Both have said no to coverage. To medicate properly for the month the cost is around $900.00. The thing that bothers me the most is my insurance company has spoken publicly and said that they will cover it. Well I have a letter saying they will not. Even through this is the only treatment that works for my epilepsy. So while the government moves forward with legalization, I hope they keep the medical marijuana patients in mind.
I have tried multiple LP’s and I know what products I like. If you are unhappy with your current LP you are not stuck with them. You are allowed to change producers and split your prescription. Until product becomes consistent and available it will be a bit of a challenge for us. That is why we need to talk about our experiences with LP’s and review your products on Lift.ca. Products will continue to improve with more selections available.
I hope that this has helped you somewhat. It is difficult for me to remember everything so my cannabis journal is important. I write down what strain, percentage of THC & CBD, cost and also how effective it was. This is a great resource tool and the best way for me to track dosages too.